Discovery Health’s “Mystery Diagnosis”: RSD (Part 1 of 2)
Cynthia Toussaint of For Grace discusses her life with RSD. Originally aired on Discovery Health in October 2005 (currently still running)– and later picked up by The Learning Channel/TLC
Caous08 Said,
January 17, 2010 @ 11:18 pm
I Have the same diagnos as her! o.O wow
armi555mw Said,
January 17, 2010 @ 11:56 pm
Makes me hate Doctor’s. I have no clue what I have. Was dx with Neuropathy, but the pain started after crushed elbow and surgery, but spread through my body. No Doctor believed me, except my Nerve studies showed damage. I went to many Doctors. My skin will turn ice cold to the touch to others, but feels on fire to me. Mayo thought RSD, but 3 states away and spread my test over months. I tried nearer med schools and was told it was in my head..Lost everything, family , and soon my home…
ddsharper Said,
January 18, 2010 @ 12:17 am
feel for you juandelib. life is so unfair. I pray that God will open another door, send the right people to your life and heal your mind and heart.
BlackeBird Said,
January 18, 2010 @ 12:53 am
There was just an article about this in People magazine where people recovered from this by being in a voluntary coma.
juandellb Said,
January 18, 2010 @ 1:49 am
I have been in battle with RSD since 2005. I was once a Tennis pro, and full of life and energy. upon being diagnosed with this, my life as it was has since gone. I have lost friends, the will to live at one point, and just energy. I am having more problems til this day. It is so hard to explain to people why I am happy one moment, and then angry and sad.
TashaRichardsonFan Said,
January 18, 2010 @ 2:24 am
Gosh!!! This must be very painful.
MrsReb64 Said,
January 18, 2010 @ 3:20 am
This story is amazing.
I have been fighting RSD since 1998 and her story touched me on so many levels. I understand everything she went through and her ballet about her battle is breathtaking.
reb
jjdenike Said,
January 18, 2010 @ 4:10 am
wish we had seen this a year ago. Most neurologists are totally clueless when it comes to RSD. They also seem almost indifferent to one’s pain.
jjd
mescalinedreams17 Said,
January 18, 2010 @ 4:27 am
My Great grand daughter Rachel Schneemann, has had two bouts with R.S.D. No one believed her pain was real. They finally sent her to Cleveland Clinic where they had knowledge of it and treated her. From that she developed an eating disorder and is now in Arizona at Rumada Ranch. R.S.D. is real.
raisinbredd Said,
January 18, 2010 @ 4:27 am
It’s true. They’re like that. My mom has lupus and her body shuts down very easily. She went to all the doctors she could find. They thought she was faking it. She had to go to a psychologist and take a mental test to prove she wasn’t crazy or making it up in her head. It’s taken her about 3 years to find a specialist that understands her condition.
marilynmansonfreak93 Said,
January 18, 2010 @ 5:22 am
it sucks when u have family that treats u like that too.
djcantre Said,
January 18, 2010 @ 5:35 am
Actually RSD CAN go into remission. It is rare and the chances are better if you catch it earlier but it is possible.
seandamondotcom Said,
January 18, 2010 @ 6:18 am
RSD is EXTREMELY PAINFUL!!!!!! I know someone with this disease and he almost had his leg amputated.
There is NO CURE for this. I wouldn’t wish this on ANYBODY! It is very difficult to diagnose.
Most Doctors are MORONS that overlook everything that is beyond a textbook case. Our Medical Industry is a SHAME
lostindreams3 Said,
January 18, 2010 @ 6:56 am
Oh, I agree. I was meaning the routine on part of the doctor. Where the doctor thinks the person justs wants attention. I’ve been in her situation too in that regard. I even was talking to a doctor in a social situation and he admitted that he feels that way about patients sometimes.
lily437534 Said,
January 18, 2010 @ 7:24 am
dude, she really hurt herself. if u think that this is a “attention routine,” then shut up, and go to a different video.
lostindreams3 Said,
January 18, 2010 @ 7:51 am
Nothing more annoying than the “wanting some attention” routine. Yeah, an artist is really wanting to spend money for no reason at doctors because she “wants attention”.
lily437534 Said,
January 18, 2010 @ 8:46 am
This video is very blurry. I can hardly tell what is going on.
craftyangel5832 Said,
January 18, 2010 @ 9:11 am
Sorry to say that once you have RSD you never get rid of it for there is no cure. So if you were Dia. really with rsd then you still have it.
sprattthebrat Said,
January 18, 2010 @ 9:16 am
Dear Cynthia–Thank you for sharing your story. I had an arthroscopic knee surgery in Oct. of 2008. I too love dance, yoga and many forms of movement. My OS said I have mild RSD. It seems to be progressing. Currently taking Lyrica and all sorts of things trying to manage the strange sensations going through my body.
A friend sent me your article in AARP.I feel uncomfortable in my own body. I hope you and John are having a peaceful, painfree life now.
Best regards–Reanee
TCWstopmotion Said,
January 18, 2010 @ 10:14 am
ya me too!!! my life is screwed now!!!
TCWstopmotion Said,
January 18, 2010 @ 10:33 am
im not sure i was diganosed a year ago and it goes from my foot to my knee but the winter makes it a hell of a lot worse!!!
jandlivsmom Said,
January 18, 2010 @ 10:34 am
Its been nearly 2 years for me since I was injured. i am a nurse and i was reclining a patient in a chair to make sure he wouldnt fall. I didnt know that the chair was broken. I felt a pop in my arm. Watching this film was like watching my own story. i had a spinal cord stimulator put in 2 weeks ago because the pain is so excruciating. Even with that, I am still taking 6 percocets a day to control my pain. NOw that winter is here again it opens up a whole new world of pain.
TaliaBeltR Said,
January 18, 2010 @ 11:28 am
i am 27 year old diagnosed with RSD on my right hand early stage, they said that if it is cought early it cant be fought but its been 6 weeks and my hand get inflammated and painful. if i dont get better does any one know if it will affect the rest of my body?
leighInSJ Said,
January 18, 2010 @ 11:51 am
I’ve had RSD (CRPS) for 3 years as of 11/29; it started in my left wrist after a simple surgery, raced up my arm, spread into my right foot and leg, right arm and hand, left foot and back. It’s spreading up my left leg and also into my right hip. Although I had early diagnosis, treatment was delayed. Fortunately, my doctor recognized it and told me to keep moving, or I’d be in even worse shape; bed rest is not good for RSD. Pain is the worst you can imagine, 24/7. It is torture.
adarkenedmind Said,
January 18, 2010 @ 12:43 pm
that’s so sad that she had to give up her dancing classes.
It sucks being in that much pain. It also sucks when people don’t believe you are in pain.